Diabetes Care During COVID Times – by the Diabetes Community Care Team

The Diabetes Community Care Team (DCCT) is a nonprofit, pharmacist-operated diabetes clinic which increases opportunities for people living with diabetes to access medical care and education. Our Mission is to help people with all types of diabetes manage the challenges of living with a chronic disease and mitigate barriers to care including financial, psychological, and medical. While we hope that one day diabetes can be cured and/or eliminated, our vision is to ensure ongoing community access to quality diabetes treatment, education, care, and management regardless of financial or insurance status now and in the future. While COVID-19 has presented numerous challenges, not least of which is keeping our at-risk clientele safe, we are rising to the challenges and have been able to offer significant help to those impacted by the health crisis and to the victims of the recent Oregon wildfires.

Julie Dewsnup is not only the founder and Executive Director of DCCT, she’s also a pharmacist and recognized diabetes educator

During these difficult times, our services are more critical to our community than ever. In addition to our billable services like Diabetes Education and full-service pharmacy, we offer our current and future clients the use of our Charitable Pharmacy, where we work specifically with uninsured patients to ensure they are still able to receive quality care when it comes to managing diabetes. Given that the current American Health system often ties health care and insurance with employment, many Americans are losing or have lost their health benefits as the direct result of the COVID-19 pandemic decimating the job markets. All medications used by our Charitable Pharmacy are the direct result of generous donations by local and regions healthcare facilities and long-term residences as well as the outcomes of a generous grant from the PacificSource Foundation for Health Improvement and United Way of Lane County made specifically for the purchase of diabetic medications. Furthermore, we are also staffed with pharmacists, all of whom generously donate their time and expertise, that are also trained to specifically address the particular needs of both people with type 1 and type 2 diabetes.

Pharmacists Molly Bloom and John Marvin show off their pandemic savoir flair

We also offer a free mentorship program (BETA – Buddies Empower Teach Achieve) for children who may also be struggling with their type 1 diagnoses and who may benefit from the experience of being paired with college students, all of whom have been trained as diabetes paraprofessionals and who also live with type 1. Led by intern Adriana Wisniewski, a student at the University of Oregon, this mentorship program is in the process of a successful transition to a virtual format in order to keep the support system in place for our BETA mentors and mentees alike.

For more information about Diabetes Community Care Team or how you can help, please visit www.dcct.life.

Dear friend, I will keep fighting for you – by Adrianna

Dear Friend, 

I am writing this letter because I don’t feel ok about the injustice in this world and that my life is easier than yours. How is this, you ask? 

We were both diagnosed 10 years ago with type 1 diabetes in Poland, our home country. We were 17 at the time. I remember when doctors told us that our lives will be different from now on and we will need to take insulin. We didn’t really know much about insulin but after our first visit to a pharmacy, we learnt that we needed to pay for it. Our families had to pay for insulin, test strips, glucose tablets. Doctors told us that diabetes care is partially reimbursed in Poland – but soon we would turn 18 and life would be difficult. 

I remember the sad face of our mums when they would come back from pharmacies complaining that the new (at that time) 24h long-acting insulin – like Lantus – cost €40 per month and was not reimbursed. And then we learnt that if we wanted to have an insulin pump with a CGM integration (a 30-minute automatic hypo stop system) we would have to pay outright for it and it wouldn’t be covered. 

Just before my 18th birthday, I managed to get an insulin pump. You wanted it too, but doctors said that you were still in your honeymoon phase so you didn’t need multiple daily injections yet or a pump. Then, 4 months after our birthdays, your honeymoon period was over and you were no longer qualified for an insulin pump. 

We both started university at the same time. I got the chance to move to France to continue my education. You stayed in Poland because a new law was introduced that granted reimbursement for insulin pumps for people up to 26 years old. 

I started to live and work in France. I remember celebrating my 26th birthday and thinking about how your access to CGM and other supplies would change on your 26th birthday. I knew you would have to pay 100% of the price of any available CGM in Poland. Infusion sets for your pump are only 70% reimbursed for you, and if your pump breaks when it’s no longer covered under warranty coverage, you would have to pay for a new one from your pocket. 

That is probably the scariest part of living with type 1 diabetes in Poland. Life gets so difficult when you celebrate your 26th birthday. Not all young people have a well-paid job at this point in their lives. Fewer can spend around €250 each month for the diabetes supplies. 

In France, I stopped thinking about the cost of diabetes because I have insurance now. I have my insulin fully reimbursed, I don’t pay a cent for my test strips or glucagon. I don’t have to pay for my Libre Sensors and I know that some CGMs are reimbursed for patients too. But that’s not all: I also don’t pay for my checkups with the endocrinologist. Every 3 months I can go to a podiatrist who takes care of my feet and to a dentist with basic care being reimbursed for me. In France, I am considered as a vulnerable person and I receive a letter that gives me the priority over others to get a flu shot for free. 

But all of this is not the best part of living in France with diabetes – the best part is the insulin pump. This device is reimbursed for all people with type 1 and we can update our choice of pump every four years, no matter if we are 27 or 67 years old. Special delivery services bring me all the supplies I need every three months. I receive infusions sets whenever I need them, and reservoirs, some alcohol wipes, and even batteries for my pump or other stuff to help me take care of my diabetes without any stress. 

When I think about how the reimbursement system in Poland compares to the more manageable one in France, I feel that the situation is very unjust. I consider myself very lucky, but I also feel bad that I am able to benefit from France’s care programme and you aren’t. I am sad that I can just open another box of CGM sensors without researching how to extend it. While you need to carefully plan out your supplies and manage your diabetes budget. Of course, we can always say that other people have worse conditions of living with diabetes than either of us, but I know how helpful it would be for you and other people in Poland to pay less and have better access to diabetes technology. 

I am sad, but I promise you I will engage in every fight out there to bring a better diabetes reimbursement system to Poland, and by sharing our story. I will support you and our friends with all my heart. I hope that someday I will proudly say that Poland has the same standards as France. 

All the best, 
Adrianna

Follow Adrianna on Instagram: @idiabetic_cukrzyk

Przeczytaj historię w języku polskim:

Drogi przyjacielu,

Piszę do Ciebie ten list, ponieważ nie czuję się z tym dobrze, że moje życie z cukrzycą jest łatwiejsze niż twoje. To jest niesprawiedliwe. Dlaczego?

Pamiętam jak 10 lat temu zdiagnozowano u nas cukrzycę typu 1. To było w Polsce, naszej ojczyźnie. Oboje mieliśmy wtedy 17 lat. Pamiętam, jak lekarze powiedzieli nam, że od teraz nasze życie będzie inne i będziemy musieli przyjmować insulinę. Ani Ty, ani ja, nie wiedzieliśmy zbyt wiele o cukrzycy czy insulinie, ale po naszej pierwszej wizycie w aptece dowiedzieliśmy się, że będziemy musieli za nią zapłacić. Nasze rodziny musiały płacić za insulinę, paski testowe, tabletki z glukozą. Lekarze powiedzieli nam, że opieka diabetologiczna jest częściowo refundowana i powiedzieli nam, że powinniśmy się spieszyć, ponieważ wkrótce będziemy mieć 18 lat i życie będzie trudne. 

Pamiętam smutne miny naszych mam, które wracały z aptek, narzekając, że nowa (wówczas) działająca 24 godziny insulina, kosztuje około 40 euro i nie jest refundowana. A potem dowiedzieliśmy się, że gdybyśmy chcieli mieć pompę insulinową z 30-minutowym systemem hipo blokady, musielibyśmy zapłacić z własnej kieszeni. 

Tuż przed moimi 18. urodzinami udało mnie udało się zdobyć pompę insulinową z refundacji. Pamiętam, że Ty też chciałeś mieć pompę, ale lekarze powiedzieli, że nadal jesteś w okresie remisji, w którym nie potrzebujesz wielu bolusów dziennie i pompa nie jest Ci tak bardzo potrzebna. 4 miesiące po Twoich 18 urodzinach Twoja remisja się skończyła, ale Ty nie kwalifikowałeś się już do pompy insulinowej.

Oboje rozpoczęliśmy studia, po pewnym czasie ja miałam szansę przenieść się do Francji, aby kontynuować naukę. Ty zostałeś w Polsce, ponieważ wprowadzono nowe prawo i refundowano pompy insulinowe osobom do 26 roku życia.

Jakiś czas później ja osiadłam na stałe we Francji. Pamiętam, jak obchodziłam 26. urodziny i myślałam o Tobie… Wiedziałam, że Ty mając 26 lat, będziesz musiał zapłacić 100% ceny każdego dostępnego systemu CGM dostępnego w Polsce. Koszty zestawów infuzyjnych są refundowane tylko w 70%, a jeśli pompa się zepsuje po gwarancji, musisz zapłacić za nową z własnej kieszeni. To chyba najstraszniejsza część bycia cukrzykiem typu 1 w Polsce. Życie staje się takie trudne, kiedy świętujesz 26 urodziny. Nie wszyscy młodzi ludzie mają na tym etapie życia dobrze płatną pracę. Właściwie niewiele osób ma, a zdecydowana mniejszość może wydawać około 250 euro miesięcznie na cukrzycę.

Odkąd jestem we Francji i jestem tu ubezpieczona, przestałam myśleć o kosztach cukrzycy. Mam zupełnie za darmo insulinę, nie płacę ani centa za paski testowe ani glukagon. Moje sensory Freestyle Libre są za darmo dla cukrzyków i wiem, że niektóre CGM są refundowane także dla pacjentów. Ale to nie wszystko. Ponieważ jestem “ przewlekle chora”, nie płacę za wizyty u diabetologa. Co 3 miesiące mogę udać się do podologa, który zajmie się moimi stopami i do dentysty, na którego otrzymam zwrot kosztów podstawowej opieki. We Francji mam status choroby przewlekłej (nie jest to orzeczenie o niepełnosprawności) i otrzymuję specjalne zaświadczenie, które daje mi pierwszeństwo, aby otrzymać darmową szczepionkę przeciw grypie. 

Ale to ciągle nie jest najlepsza część życia z cukrzycą we Francji. Najlepsza część to pompa insulinowa. Jest refundowana dla wszystkich cukrzyków typu 1 i mogą wymieniać pompę co cztery lata, nawet jeśli mają 27 czy 67 lat. Specjalna firma medyczna dostarcza pod moje drzwi wszystko, czego potrzebuję co trzy miesiące. Zestawy infuzyjne, zbiorniki, chusteczki nasączone alkoholem, baterie do pompy lub inne rzeczy, które mogą się przydać,za darmo aby bez stresu zająć się cukrzycą.

Kiedy myślę o refundacji w Polsce, czuję, że jest to bardzo niesprawiedliwe. Wiem, że mam szczęście, bo ja mam prosto, łatwo i za darmo, a Ty nie. Jest mi z tym źle. Głupio mi, że mogę po prostu otworzyć kolejne pudełko z FGM, nie przejmując się jego przedłużeniem i planowaniem budżetu na cukrzycę. Zawsze można powiedzieć, inni mają gorzej. To prawda, ale warto podkreślić, że wsparcie finansowe i dostęp do technologii diabetologicznych poprawiłyby jakość życia i wyniki w cukrzycy Twoje i bardzo wielu innych cukrzyków w Polsce

Jest mi smutno, ale obiecuję Ci, że będę angażować się w każdą walkę o wprowadzenie lepszego systemu refundacji cukrzycy w Polsce. Z całego serca będę wspierać Ciebie i naszych przyjaciół i mam nadzieję, że kiedyś z dumą powiem, że Polska ma takie same standardy  jak Francja.

Wszystkiego najlepszego,
Adrianna

Insulin Crisis in Iran – by Mahsa

I’m a 20-year-old girl and I was diagnosed in 2019 (just under a year and a half ago. I live in Tehran. I love dancing and singing. This year I’ve made lots of friends who also have diabetes, and reading English books is another interest that I’ve recently discovered. 

It’s been a real tough year. In these quarantine days, lots of people are dying in my country because of coronavirus. My mother is dealing with coronavirus now. Fortunately she is feeling better and better everyday.

On top of this, Iran is facing an insulin crisis. Suddenly, officials in Iran just made any foreign equipment and medicine for diabetes management unavailable – without any consideration for people with diabetes and our doctors’ opinions. Usually, people with diabetes must search lots of pharmacies in their city for insulin. If they are lucky, they can find 2-3 insulin pens – usually only short-acting types. Novorapid and Lantus are popular types among diabetics here (people take injections with pens). Recently, the only accessible type of long acting pens is “Basalin,” for which there is no international evidence and confirmation that this medicine is safe and credible (e.g. FDA approval). 

Among all the insulin problems, we have to cope with the shortage of blood test strips too. We are forced to use “internal glucose meters,” which we don’t trust. You must know we just have access to glucose meters – there are no other advanced devices available (such as pumps, sensors, CGMs like Dexcom, etc.) and nowadays we can’t find testing strips. Now how can we control our diabetes?! We don’t know. 

We’ve heard lots of heartbreaking stories. For instance, there was a mother who didn’t feed her diabetic children cause they couldn’t find insulin. I myself use Novorapid and Toujeo, and Novorapid quickly became 10 times more expensive than what I could find about 3 weeks ago. The cost of one pack of Novorapid and 2 packs of Toujeo was 200,000 rial (about $5 USD or $6 AUD) and that was in pharmacy and with insurance. Three days ago I could find a pack of Novorapid and I paid 2,750,000 rial – approx. $65 USD/$91 AUD – and that was without any insurance cause we couldn’t find it anywhere, so we’ve bought it from a smuggler who buys medicine and sells it illegally and more expensive than what it should be. The cost was not logical at all! 

We don’t know why exactly this happened! Some say it’s because of the American sanctions against Iran. All we know is that political issues must not affect people’s lives like this. 

In response, the diabetes community has made social media groups and used hashtags to help these people with our own stores of insulin. We don’t know what will happen next. I have no idea what else people can do to help us overcome this. The problem is a political issue that affects people, especially those of us who are dealing with chronic diseases for the rest of their lives. It is cruel. It is unfair.

Follow #ThereIsNoInsulin انسولین_نیست#  for more perspectives on the developing situation in Iran. Nonprofit advocacy groups like T1International are working to achieve #insulin4all. 

Read in Persian: 

من یک دختر ۲۰ ساله هستم که در سال ۲۰۱۹ مبتلا به دیابت شدم.( کمتر از یک سال و نیم پیش) 

من در تهران زندگی میکنم. عاشق رقصیدن و آواز خواندن هستم. علاقه ام به خواندن کتابهای انگلیسی را تازه کشف کردم ،و  امسال دوست های دیابتی زیادی پیدا کردم.

امسال واقعا سال سختی بود. مردم زیادی در کشورم، به خاطر ویروس کرونا در حال مردن هستند.

مادر من هم درگیر ویروس کرونا شده اما خوشبختانه، هرروز بهتر و بهتر میشود. 

از آن مهم تر، ایران با بحران انسولین مواجه است. به طور ناگهانی، صاحب منصبان در ایران همه دارو ها و تجهیزات دارویی خارجی را برای افراد دیابتی، غیر قابل دسترسی کردند؛ بدون در نظر گرفتن نظر افراد مبتلا به دیابت و پزشک ها. معمولا دیابتی ها باید در بسیاری از داروخانه های شهر خود برای انسولین جست و جو کنند. اگر خوش شانس باشند میتوانند در نهایت۲-۳قلم پیدا کنند_معمولا فقط از نوع کوتاه-اثر.نوو رپید و لنتوس دو نوع انسولین هستند که درمیان مردم، متقاضی بیشتری دارند.(ما با انسولین قلمی تزریق میکنیم.) اخیرا تنها نوع انسولین قلمی طولانی-اثری که در دسترس است “بازالین” است، که هیچ تاییدیه و مجوز جهانی مبنی بر اینکه استفاده از آن قابل اعتماد است، وجود ندارد.( مثل تاییدیه FDA).

درمیان تمام مشکلات انسولین، ما با کمبود نوار تست قند خون نیز مواجه هستیم. ما مجبور به استفاده از تولیدات داخلی دستگاه تست قند هستیم، دستگاهی که به آن اعتمادی نداریم. لازم است بدانید که در ایران هیچ سیستم پیشرفته ای برای کنترل دیابت در دسترس نیست.(مثل سنسور ها، CGMها مثل دکسکام ، پمپ و…) ما فقط از دستگاه گلوکومتر استفاده میکنیم و امروزه نمیتوانیم نوار تست دستگاه هایمان را پیدا کنیم.

حالا چطور باید دیابت خود را کنترل کنیم؟ نمیدانیم!

ما شنونده داستانهای غم انگیز زیادی بودیم؛ برای مثال، در مورد مادری شنیدیم که نمیتوانست به بچه های دیابتی خود غذا بدهد چون هیچ انسولینی پیدا نکرده بودند.

من نوورپید و توجئو استفاده میکنم و نوورپید به سرعت، ۱۰برابر گرانتر از چیزی که ۳ هفته پیش خریدم، شد. ۳هفته پیش، ۱بسته نوورپید و ۲بسته توجئو را به قیمت ۲۰۰،۰۰۰ ریال خریدم. این قیمت را با بیمه پرداخت کردم و دارو را از داروخانه گرفتم. ۳روز پیش، ۱ بسته نوورپید را به قیمت ۲،۷۵۰،۰۰۰ ریال خریدم؛ این قیمت بدون بیمه بود چون هیچ جایی موفق به پیدا کردن دارو نشدیم، آن را از یک دلال دارو(کسی که دارو میخرد و آن را به طور غیر قانونی و گران تر از چیزی که باید، میفروشد.)خریدیم.

 این قیمت اصلا منطقی نبود.!

ما نمیدانیم دقیقا چرا این اتفاقات افتاده است! برخی میگویند که این نتیجه ی تحریم های آمریکا علیه ایران است. تمام چیزی که میدانیم این است که مسائل سیاسی نباید بر روی زندگی و جان مردم تاثیرگذار باشد.

در پاسخ،ما جامعه دیابتی ها، در فضای مجازی گروه هایی تشکیل دادیم و با استفاده از هشتگ ها، به افراد با ذخیره های انسولین خودمان کمک کردیم. نمیدانیم در آینده چه پیش خواهد آمد! نمیدانم مردم برای این اتفاق میتوانند چه کار کنند! مسئله، یک مسئله سیاسی است که بر روی مردم تاثیر گذاشته؛ به خصوص ما مردمی که تا آخر عمر با یک بیماری مهم و حیاتی درگیر هستیم. 

Nigeria Diabetes Online Community (NGDOC) and diabetes advocacy work in Nigeria and Africa – by Debbie Bunmi

In 2012, when there was a lot of uncertainty in Nigeria, seven undergraduates of a reputable university started a discussion in their dormitory about the state of healthcare and diabetes awareness in Nigeria. This led to the creation of the Nigeria Diabetes Online Community (NGDOC) in 2013. Just nine days after this official launch on March 10th 2013, the first ever online discussion about diabetes awareness and advocacy in Nigeria was ignited, birthing the diabetes advocacy movement in Nigeria. 

We are now in year 2020, and the NGDOC has tremendously grown, championed and led many educative, supportive, empowering and advocacy projects in Nigeria and throughout Africa. 

@theNGdoc first caught my attention in the later part of 2013, over a year after I joined Twitter. I had been living with type 1 diabetes for over a decade, and I was searching for a community or online platform where I could get substantial content about type 1 diabetes in Nigeria, and @theNGdoc provided that.

Fast forward four years later, after I became good friends with the then Chairman Adejumo Hakeem, M.D. (@hadejumo), I joined the organization as a volunteer. In 2019, I was approached by the Chairman and asked if I would be interested in taking over the running of this awesome organization, which I accepted. It was very scary and super exciting for me at the same time because of the huge responsibility to run a big platform and push the advocacy work around type 1 diabetes and the #insulin4all campaign. 

Interestingly, at @theNGdoc we do mostly offline work because 85% of people we work with aren’t on the internet because of the high cost of phones and internet subscription in this part of the world. Most are living below poverty margin, which has been a big challenge for us @theNGdoc. We discovered through experience that just giving out or buying insulin and other management tools for type 1 diabetes isn’t sustainable in the long run, so we are working on empowering people living with type 1 with sustainable skills. We provide people with the skills to establish start-ups, which will in turn help generate funds so they can afford their insulin whilst going to school or working to cater for their families. 

How can you help us? Donations in cash and in kind really go a long way to keep people with diabetes alive and help them to fulfill their dreams. Since we are still in the process of setting up a platform for web donations, local supporters are welcome to donate in cash. We appreciate international supporters reaching out for virtual volunteer opportunities and following @theNGdoc on Twitter. All kinds of support allow us at @theNGdoc to develop the resources to push the limits in our diabetes advocacy journey. 

Follow @theNGdoc on Twitter here.

Check out our minisode with Debbie here.

(Uganda) Atina Glow Initiatives – by Anita K Ninsiima

Atina Glow Initiatives (AGI) is a public health NGO dedicated to advocating for people living with diabetes and other non-communicable diseases (NCDs) in Uganda. I started AGI in September 2019 with the aim of sustaining the livelihoods of people living with these conditions and reducing the incidence of cases. Today, AGI is a women-founded organization in line with the U.N. Sustainable Development Goal (SDG3) and a way for me to use my voice to advocate for people living with NCDs in my community. 

The challenges I faced as a type 1 diabetic for 14 years since childhood motivated me to form AGI: coping with the new lifestyle, managing my daily medications, and dealing with stigma through adolescence, secondary school, university and beyond. Because of all this, I felt I needed to make an extra effort to inspire people out there faced with some of these or even worse challenges and encourage them to live a normal happy and healthy lifestyle. In addition to living with type 1, I have lost friends and family due to NCDs like cancer, hypertension, and diabetes, and through starting the organization I can help to educate the community on control and preventive measures and how to cope with these diseases in life.

It was a shocking experience to receive the news that I have diabetes at a young age. But this didn’t stop me from studying and making it to university with the full support of family and friends. At university, I was always branded a “sickly lady” who would never make it in life, but actually that was what motivated me to stand out and establish AGI as a clear voice for people living with NCDs – which is essential for the community.

In Uganda, NCDs are common and young children and youths have had their own share of the burden. According to World Health Organization statistics, NCDs kill 41 million people each year, equivalent to about 70% of all deaths globally; three-quarters of deaths from NCDs occur in low and middle-income countries. 

Through the AGI slogan “Embracing Ample Health,” we emphasize that good health is a priority for every individual. We engage AGI members in health and development initiatives, creating a safe space and acknowledging and educating this particular group about their health rights as they relate to living with NCDs. On our Facebook page, we seek to bust myths about NCDs and advocate for government support of people living with NCDs during the COVID-19 pandemic. To reduce the burden of living with NCDs, we also advocate for accessibility to optimum healthcare for people throughout Uganda. On the AGI website I shared a personal testimony about my diabetes diagnosis, which taught me the following lessons that I wish to share with others through my work: 

1. Acceptability

2. Adoption

3. Body Discipline

4. Fighting for my body

5. To create a change

Follow Atina Glow Initiatives on Facebook and their website.

Living with Diabetes in the Maldives – by Juzan Mohamed

10 years after my diabetes diagnosis, no matter how much I always wanted to keep hoping, believing, and praying, there were several times that I almost thought, “I’m not going to make it this time. I’m probably going to die on this hospital bed”.

Today, I’m a special educational needs teacher and a member of Diabetes Society of Maldives. I love both kids and cats very much!I would like to thank all the doctors who have treated me and helped me. I would like to thank my father, brother, and especially my mother, who had been the source of my strength. My heartfelt thanks also goes to the Diabetes Society of Maldives. Words cannot describe how thankful I am for that community.

Several people have mockingly told me that I must have gotten this disease because I must have eaten a lot of sugar. I believe it’s important that we put more effort into educating the public about diabetes, its risk factors, and any preventive measures. I wish they knew that there are many factors involved not only in a diagnosis, but in diabetes management. Insulin for us, along with the means to inject it, is as important to us as the air we breathe. We just cannot survive a single day without these injections.

Getting an insulin pump in 2017 was nothing short of miraculous. This was a day that I never thought would come. This pump is always connected to the body with a tiny needle which needs to be changed once in every 3 days – it’s microscopic in size and automatically injects my insulin. Yeah, this is pretty amazing!

That’s why I advocate for the community of diabetics in Maldives to soon have access to more effective treatment options, including different brands/types of insulin and increased availability across the country. It is my hope that insulin pen needles, lancets and test strips would soon be covered under Aasandha, the universal single-payer health insurance scheme of the Maldives. More of us with type 1 diabetes need to have access to insulin pumps, which provide us with an easier life. In Shaa Allah, we will soon have better days and find a cure for diabetes.

Follow Juzan on Instagram: @juzanmohamed

Tina’s Type One & Studying Abroad – by Tina Mallia

Back in April 2018, after a long day at university, I went home to find a letter of acceptance to study abroad on an Erasmus programme. Erasmus allows students to study in another European country for a couple of months – I had applied to study in Scotland for around five months, and as ecstatic as it felt to be chosen for such a programme, I was also petrified of moving to a new country, somewhat far away from home. 

My fear was amplified when I remembered that I would be living alone with diabetes. For any other university student this may be a normal occurrence, but for students in Malta, for the most part, we tend to live at home with our parents until we graduate. With that being said, I was lucky to always have my parents help me keep tabs of my diabetes management especially during stressful periods, sometimes even have them noticing hypoglycaemic symptoms before I even notice them myself. Doubts and concerns started to pop up in my head:

“What if I get a severe hypo or hyperglycaemia and no one will notice?”

“What if the UK does not use the same types of medicine as we do?”

“How will I be able to keep everything in check?”

These types of thoughts overwhelmed me to a point where I even considered not going up to Scotland. However, the thought of countless people worldwide successfully living alone with diabetes, and knowing that one day or another I would require to do so myself, consoled me. Furthermore, studying abroad was something I always wanted to experience and did not want to pass up on such an opportunity, simply because of a fear, which either way I would have to face in the near future. Despite saying I was living alone, I did have a friend coming up with me, to which we made it a point that we would live next door to each other. Knowing all this and having her support really encouraged me to take the leap. Needless to say, a lot of research commenced – especially regarding the healthcare system in the U.K. 

Here in Malta, we are given free healthcare services, diabetes supplies, and medicine, however this excludes CGMs and insulin pumps. These tools have not yet been fully introduced in Malta. However, through elaborate methods and hefty prices, some Maltese pay out of pocket for the use of CGMs. Knowing that the U.K. has better access to such diabetes technologies and having easier access to them made me feel more secure about spending a few months there.

Despite some slight differences in the type of healthcare supplies available in the U.K., the research I did around the National Healthcare System (NHS) truly put my mind at ease. I made a plan with my local endocrinologist to take enough medicine with me in case of differences in the brands available in the U.K. and to also assure myself that I have the full supply I require. Before leaving, I gave a briefing about diabetes to the friend who travelled with me so that she could fully understand what diabetes is and how to help me during a hypo or hyperglycaemic episode, if need be. This made both of us feel secure and prepared for the unexpected.

On January 5th 2019, we set off on one of the most unforgettable experiences I have ever had. I was positively surprised with the NHS, as although I heard various excellent reviews about them, I did not expect such efficiency with their system. Shortly after I applied for free medical services with my student eligibility, I was immediately called in for various check-ups like eye screening and vascular review. Although I had these services in Malta, I did not expect such services for a temporary resident there and with such short wait times!

However, my diabetes management there was not all plain sailing, especially due to the fact that I was in a new place, leading a different lifestyle, and adopting new eating habits. In Malta, I was used to getting around by cars and buses, while in Scotland I was walking to most places on a daily basis. The stress of moving to a new place and the usual stress from university also did not positively affect my diabetes management. To add onto this, I was frequently experiencing hypos at night, so much so that at one point I was no longer feeling hypos during my sleep. With thanks from the support I was getting from my local endocrinologist and diabetes nurse specialists, I was able to sort this issue out, amongst a few other issues that I was facing whilst living there.

I am grateful I was able to experience living independently in an entirely new country, meeting some of the most wonderful people from all around the world, and most importantly, doing what I love the most: travelling. I am thankful for all the encouragement I received from my family and friends, and also from my doctors and specialists who pushed me and gave me heart to not let such an opportunity pass by simply because of my diabetes. The most prominent lesson I learnt from this experience is that my diabetes should not dishearten or stop me from achieving anything that I truly desire to achieve, and I truly encourage others to do the same, as you never know what one fantastic opportunity could lead to.

An Unexpected DiaJourney – by Ronaldo Pineda Wieselberg

There are some people who use their life problems as their best qualities. I could say that I am one of these people. Back in 1993, I was diagnosed with type 1 diabetes, and even knowing I wanted to become a physician, the topic “diabetes” was totally unknown. However, my life was turned upside-down, and back in 90’s there was very little information about diabetes. This led me to start studying about diabetes as soon as I can remember.

In 2011, when I was 18, I started a training programme called “Young Leaders in Diabetes” in ADJ Diabetes Brazil, the diabetes association which I am part of. In the same year, my then girlfriend, who also had diabetes, passed away due to a diabetic ketoacidosis caused by an infection. I was utterly shocked. This was the turning point for me, to devote my entire life to avoid this fate for anyone. The lightning struck right by my side, but I had the unique chance to change people’s lives for better.

I joined the diabetes camp counsellor’s team in the same year, a role I played until 2018, when I graduated from medical school. Being part of a diabetes camp team was quintessential to understand the needs of people with diabetes besides my own. It was important to learn how to deal with different beings who had their own dreams, fears, and ideas about the world. While in this position and as a medical student, I noticed that people with diabetes lacked information about the condition itself. Then, I started to write about diabetes, first for a website called “Diabeticool”, and soon after for my own portal, called “Arquimago da Insulina” (Insulin Archimage in Portuguese), that can be accessed in Facebook, Instagram, Twitter or www.arquimagodainsulina.com.br.

These experiences led me to a holistic comprehension of diabetes, not only as a “disease”, but as a condition that entwines mind and body and few healthcare professionals know how to deal with. It was no surprise that I wanted to become an Endocrinologist – a journey in which I am now! – but in Brazil it is possible to act as a Diabetologist shortly after the graduation, since it is not a recognized specialty here, and thus, I am doing this in my diabetes association.

My current projects are to write about diabetes for the general population, aiming for strategies to prevention and health promotion, developing educational programmes for people with diabetes in vulnerable conditions and, why not?, developing projects for health education for people with non-communicable diseases.

Read Ronaldo’s story here in Portuguese:

Uma Jornada Inesperada

Existem algumas pessoas que transformam os problemas da vida em suas melhores qualidades. Eu poderia dizer que sou uma dessas pessoas. Em 1993, fui diagnosticado com diabetes tipo 1 e, mesmo sabendo que queria ser médico, o tópico “diabetes” era totalmente desconhecido. No entanto, minha vida virou de cabeça para baixo e, nos anos 90, havia muito pouca informação sobre diabetes. Isso me levou a começar a estudar sobre o tema desde que me entendo por gente.

Em 2011, quando eu tinha 18 anos, comecei um programa de treinamento chamado “Jovens Líderes em Diabetes” na ADJ Diabetes Brasil, a associação de diabetes da qual faço parte. No mesmo ano, minha então namorada, que também tinha diabetes, faleceu devido a uma cetoacidose diabética causada por uma infecção. Fiquei totalmente chocado. Este foi o ponto de viragem para que eu dedicasse toda a minha energia para evitar este destino para qualquer outra pessoa. O raio caiu bem ao meu lado, mas tive a chance única de mudar a vida das pessoas para melhor.

Eu me juntei à equipe de monitores do acampamento de diabetes no mesmo ano, uma função que desempenhei até 2018, quando me formei na faculdade de medicina. Fazer parte de uma equipe de acampamento de diabetes foi fundamental para entender as necessidades das pessoas com diabetes além das minhas. Foi importante aprender a lidar com diferentes seres que tinham seus próprios sonhos, medos e ideias sobre o mundo. Enquanto estava nesta posição e como estudante de medicina, percebi que as pessoas com diabetes não tinham informações sobre a condição em si. Então, comecei a escrever sobre diabetes, primeiro para um site chamado “Diabeticool”, e logo depois para o meu próprio portal, chamado “Arquimago da Insulina”, que pode ser acessado no Facebook, Instagram, Twitter ou www.arquimagodainsulina.com.br.

Essas experiências me levaram a uma compreensão holística do diabetes, não apenas como uma “doença”, mas como uma condição que enlaça corpo e mente e com a qual poucos profissionais de saúde sabem lidar. Não foi nenhuma surpresa que eu quisesse me tornar um Endocrinologista – uma jornada em que estou agora! – mas no Brasil é possível atuar como Diabetologista logo após a formatura, já que não é uma especialidade reconhecida aqui e, portanto, estou fazendo isso na minha associação de diabetes.

Meus projetos atuais são escrever sobre diabetes para a população em geral, visando estratégias de prevenção e promoção da saúde, desenvolvendo programas educacionais para pessoas com diabetes em condições vulneráveis ​​e, por que não?, desenvolvendo projetos de educação em saúde para pessoas com doenças não transmissíveis.

Finding Diabetes Support Through Art & Positivity – by Suzy

Suzy is an artist and painter from Moscow who wrote to us about how she sees her life with diabetes through the lens of her sketches – and how much the diabetes online community means to her! We’re excited to share her postcard in English and Russian. Be sure to check out her work on Instagram here!

Hi, my name is Suzy! I work as an IT computer operator/data processor and I also have a degree in choreography. I was born in Armenia and am currently living in Russia.

My diabetes is 15 years old. I was living in Russia when I was diagnosed. I was in the first grade and my class was supposed to get medical exams for the school and all together we went to the clinic. By that time, my parents had noticed that I lost weight, was drinking more water, and using the bathroom frequently. I often feel nauseous and weak. Shortly after the medical examination, we received a class from the clinic. My mom was told to get me ready, the ambulance is coming to pick us up. I never lost consciousness or needed an IV. They gave me a shot of insulin right away. That was the day when my life started to change drastically.

For a month my normal routine was unstable. After the hospital, I stayed home from school for a while. I had been dancing since I was little, but that had to stop as well while my mom and I learned how to manage my sickness. Most of the time, my mom was more involved in my life with diabetes than I was. I was getting used to it slowly – up until I was 18 years old, I was adapting to my sickness. 

It’s a little hard to live with diabetes in Russia, but the country is trying. In Russia, it is a bit complicated to get the medication in the right quantities. It is hard to get an insulin pump and supplies. But it is getting better here. Here, you can join a waiting list to get a free pump, but supplies for the pump are provided only to those who are on disability. If you didn’t apply for the disability, you have to pay for those supplies out of pocket. Currently I am using insulin pens and I’m not sure if I should switch to a pump. Many suggest switching, saying that a pump would make life easier, but I am used to taking the insulin shots. Here, you need to visit an endocrinologist monthly, they manage your diabetes, help to figure out dosage and write prescriptions for insulin. Sometimes, there is no insulin and test strips, so I buy those on my own. 

As I was getting older and more independent, puberty hit. I stopped taking care of my condition. That is when my health problems started. I wish all diabetics could share their experience with their parents, friends and loved ones, and look for support in moments like this, not be too hard on themselves. We all get tired, but necessary support can help during the complicated times when you feel like giving up. 

In many ways, Instagram helped me to manage my diabetes better. I met many diabloggers and many motivate you to be better. You see that they look great, they have families and children, and everyone is healthy. I decided to become a diablogger and make sketches about diabetes. I want people to understand that they are not alone. Everyone experiences diabetes differently, but there are many moments that make us closer. It doesn’t matter where you live, which corner of the world, if you have a low blood sugar experience, the whole world shakes the same way. 

Social media is very helpful in this period of coronavirus. During this state of idleness, you constantly want to munch on snacks, but then you see other bloggers exercise, come up with challenges, and motivate each other. 

Do not be ashamed of your condition. I used to be afraid to check my blood sugar in public, which I now realize feels wrong to me. Your health is more important. People are not ashamed to smoke, drink alcohol, and kiss in public – therefore we should not be ashamed to give ourselves a shot even if we are in the park or at an important meeting. Always share your problems with the close circle of friends. They need to know how to perform first aid. Love yourself, love life. 

I try to find positivity in everything that surrounds a person with diabetes.  

Through my drawings I try to illustrate all the uncomfortable situations that a person with diabetes goes through. And when diabetes is seen as something bright and colorful, it becomes less frightening.

Читать по русски:

Привет, меня зовут Сюзи! Я работают оператором ПК. А так же есть диплом хореографа. Родилась в Армении, но проживаю в России. 

Моему диабету 15 лет. Я уже жила в России, когда мне поставили диагноз. Я училась тогда в первом классе. Нам всем классом нужно было сдать анализы для школы, и мы дружно пошли в поликлинику. Уже к этому времени мои родители заметили, что я очень похудела, много пила воды, бегала часто в туалет. Часто тошнило меня, не было сил. Через некоторое время после сдачи анализов нам позвонили с поликлиники. Маме сказали собирайте вашего ребенка, за вами едет скорая. В обморок я не падала, капельницу мне не ставили. Сразу вкололи инсулин. С этого дня моя жизнь кардинально начала меняться.

На месяц я выпала из своего привычного режима. После больницы я некоторое время не ходила в школу. Я с детства занималась танцами, но и это пришлось оставить на время. Мы учились с мамой контролировать свою болезнь. Больше всего моя мама была вовлечена в жизнь с диабетом, чем я. Постепенно я начинала привыкать ко всему. До 18 лет я подстраивалась под свою болезнь. 

В России пока немного сложно жить человеку с диабетом, но все же страна старается. В России немного сложнее получать лекарства в нужном количестве. Сложно получить помпу и расходные материалы. Но наша страна постепенно улучшается. Сейчас я на шприц ручках, пока не решила переходить ли на помпу, многие советуют, говорят помпа облегчает жизнь, но я так привыкла к инсулиновым шприцам. У нас нужно каждый месяц посещать эндокринолога, он контролирует диабет, помогает разобраться с дозами и выписывает рецепты на получение инсулина. Иногда бывает что инсулина и тест полосок нет и я покупаю их сама. У нас можно встать в очередь на получение бесплатной помпы, но расходные материалы к помпе выдают только тем кто оформлял инвалидность. Если ты не оформлял инвалидность, то расходные материалы покупаешь сам. Когда я начала становиться более взрослой и самостоятельной, начался переходный возраст. И тут начались проблемы со здоровьем. Желаю всем диабетикам, делиться с родителями, друзьями, любимыми, искать поддержку в такие моменты, чтобы не сделать себе хуже. Мы все устаем, но нужная поддержка может помочь тебе в трудные минуты, когда хочется сдаться.

Во многом Инстаграм помог мне следить лучше за диабетом. Я познакомилась со многими диаблогерами, многие очень мотивируют тебя становится лучше. Ты видишь, что они прекрасно выглядят, у них есть семьи и дети и все здоровы. Я решила начать изображать диаблогеров, делать скетчи на тему диабета. Чтобы люди могли понять, что они не одни такие. Диабет у всех протекает по разному, но много моментов есть, которые нас сближают. И не важно где ты именно живешь, в каком уголке мира, если у тебя гипогликемия, то весь мир трясет так же. 

В период коронавируса соцсети очень помогают. От безделья хочется много кушать, но видишь как другие блогеры занимаются спортом, устраивают челленджи, мотивируют друг-друга. 

Не стесняйтесь никогда своей болезни. Я раньше боялась измерить сахар крови в общественном месте. Это не правильно. Здоровье важнее. Люди не стесняются курить, выпивать алкоголь, целоваться. Так и мы не должны стесняться сделать себе укол, даже если сидим в парке или на каком-то важном совещании. Всегда рассказывайте своему близкому кругу друзей о проблеме. Они должны уметь оказать вам первую помощь. Любите себя, любите жизнь. 

Я пытаюсь найти во всем что окружает диабетика позитивные моменты.

Стараюсь передать через рисунки все неловкие ситуации, которые происходят с диабетиками. И когда видишь таким ярким диабет, он перестает казаться чем-то страшным.

Translation by Lidiya Kan.

Enhancing the Lives of People with Type 1 Diabetes in India – by the Diabetes India Youth in Action (DIYA) team

At Beta Change, we love hearing about and working with like-minded individuals and groups. In this Global Postcard, we will hear from the Diabetes India Youth in Action (DIYA) to learn about how they are providing support to young people living with type 1 diabetes in India.

What is DIYA about?

DIYA exists with a mission to enhance the lives of people living with type 1 diabetes in India. It seeks to realize its mission through education, support, collaboration, and advocacy. We at DIYA, believe in strengthening the three key pillars of building up a stronger community and patient voice. The three pillars being : 

  1. ADVOCACY – working with healthcare professionals, stakeholders, government, research agencies and organizations for bringing policy level changes for people living with type 1 diabetes.
  2. AWARENESS – Conducting various educational campaigns and programs for spreading awareness about type 1 diabetes and related issues.
  3. COMMUNITY ENGAGEMENT – Engaging and empowering people living with type 1 diabetes through conducting youth led campaigns, events, workshops and social media initiatives.

Why DIYA?

The word “DIYA” in the Hindi language symbolises a small lamp and it is usually made out of clay which is lit using oil and a cotton thread to lighten up houses in the dark. With the similar vision of enlightening lives of people from the darkness of living with the chronicity of type 1 diabetes, the team got together from different professional backgrounds. They all unanimously felt that there is an impending need for diabetes awareness, psychological support and affordable management of type 1 diabetes in India. Our efforts include raising awareness, exchanging reliable information, overcoming discrimination and supporting research on type 1 diabetes – all through a supportive community building.

Global Partnerships

It’s been three years since DIYA first started and we have successfully conducted various annual diabetes residential camps, workshops for diabetes education, school awareness drive and fun events like Type one Run. Over the years, we have partnered with Global Diabetes organizations like: Beyond Type 1, T1International, League of DiAthletes (LOD) and the International Diabetes Federation. It has been an absolute honour for our team to represent diabetes voices from India at many national and international conferences.

The long-term goal of our team is to raise awareness in India about type 1 diabetes and ensure no child dies due to lack of knowledge about self- management of the condition. We aim to ensure access and affordable healthcare to people living with type 1 diabetes in India.

Upcoming DIYA projects

With the uncertainty and anxiety driven atmosphere since the COVID 19 pandemic and nationwide lockdown in India, DIYA continued to engage the community with new projects. 

  1. DIYA Instagram Weekend Festival – inviting guest speakers with diverse talks on Diabetes and other metabolic conditions. Sessions on lived experiences and impact of the lockdown on people living with diabetes were discussed. 
  2. The Butterfly Effect – A programme to ensure the knowledge about living with type one diabetes and awareness continues to spread through wings of its trained volunteers. Monthly sessions of 10 volunteers are trained about managing T1D so they can be helping hands for others in the community. 
  3. Annual DIYA Leadership Camps – Every year DIYA members gather for a residential camp away from the daily hustle of living with T1D to feel empowered and motivated to live beyond diabetes.  
A group of people sitting on a large rock face.

Still think you are alone? Get connected to be a part of this stronger community in India.
Facebook – DIYA
Instagram – @diabetes_india_youth_in_action 
Website – http://diya.org.in 

Written by the DIYA core team: 
Dr Apoorva Gomber 
Sahil Madan 
Kartik Gera 
Chaarvi Arora 
Harsh Kohli 
Manjeet Kaur Bhatia 
Abhimanyu Kharbanda 
Devaank Singh 
Nehu Gumber 

ग्लोबल  पोस्टकार्ड – बीटा चेंज

डायिबटीज़ इंडिया यूथ इन ऐक्शन [दिया ] ऑर्गनायज़ेशन (Diabetes India Youth in Action)

  • “दिया” ऑर्गनायज़ेशन के बारे में:

भारत की गलियों  से, काफी हाउस की अनिगनत बैठकों और, ‘मधुमेह पीड़ित’ के ठप्पे के डर से खुद को उबारने के लिए “दिया” अस्तित्व में आया। ‘ डायिबटीज़ इंडिया यूथ इन ऐक्शन’ (दिया) एक गैर लाभकारी ट्रस्ट है जिसकी स्थापना कुछ उत्साही मधुमेह योद्धाओं  ने की और जैसा कि  नाम है, इन्होंने  अपने ज्ञान की रोशनी से अज्ञानता के अंधेरे को नष्ट करने के लिए तीन वर्ष पहले इस नयी सोच की नीवं रखी। ‘दिया’ ऑर्गनायज़ेशन पूरी तरह से गैर लाभकारी ढंग से टाइप 1 मधुमेह से जुड़ी नकारातमक सोच को जड़ से मिटाने के लिए प्रयासरत है। इसके लिए हम मधुमेह से पीड़ित बच्चों और उनके परिवार  के सदस्यों के लिए विशेष कार्यशालों  का आयोजन करते है जहां उन्हें डर-सहमकर अपनी परेशानी को छिपाना नही बल्कि  मजबूत इरादो  और दृढ़  संकल्प  के साथ आगे बढ़ना सिखाया जाता है ताकि एक सुदृढ़ और आत्मनिर्भर टाइप 1 समुदाय का निर्माण हो सके।

  • दिया को आरंभ करके आप सब को क्या मिला?

हिंदी भाषा में  ‘दिया ‘ शब्द  एक छोटे से दीपक का प्रतीक है जो  मिट्टी  का बना होता है जिसमें तेल भरकर, सूती धागे की बाती को जलाकर घरो में  फैले अंधकार को मिटाया जाता है।

टाइप 1 मधुमेह की चपेट में  आने के बाद बच्चों और उनके परिवारों को अपना जीवन भी अंधकारमय प्रतीत होने लगता है। इस अंधकार को मिटाकर ज्ञान की रोशनी फैलाने के उधेश्य से दिया ने विभित्र षेत्रो में  सफलतापूर्वक  कार्य  कर रहे टाइप 1 से पीड़ित लोगों की एक टीम तैयार की।

हम सबने महसूस किया कि  भारत में  टाइप 1 मधुमेह के प्रति  जागरुकता, मनोवैज्ञानिक सलाह और सस्ती सुलभ स्वास्थ्य  नीति की सख़्त ज़रूरत है। हमारे प्रयासों में, जागरूकता बढ़ाना, विश्वसनीय जानकारियों को शेर करना, टाइप 1 मधुमेह रोग़ियो  के साथ हो रहे

भेदभाव को दूर करना और इस षेत्र में  हो रहे नवीनतम अनुसंधानो  का समर्थन  करना है, और इस सब के लिए हमने एक भरोसेमंद टाइप 1 टीम तैयार की। सबने मिलकर कई सराहनीय कार्य किए जिनका विवरण आगे ि दया गया है। हमें गर्व  है कि हमने जो सोचा था, वह कर दिखाया और हमारी कोशिश जारी है।

  • आपके उदेश्य और गितिविधयां क्या है?

भारत में  टाइप 1 मधुमेहग्रस्त की अस्त वव्यस्त जीवन शैली को वापस पटरी पर लाकर उन्हें दीघारयु बनाना “दिया” का मिशन है। शिक्षा, सहायता, सहयोग एवं टाइप1 के अिधकारो की रक्षा के प्रयास द्वारा  ‘दिया’ अपने मिशन को पूरा करने की दिशा में  निरंतर अग्रसर है। हम एक सशक्त समुदाय के निर्माण और मधुमेह रोगियो की आवाज़ बनने के लिए निम्र  तीन बुनियादी स्तंभों को सशक्त कर रहे है:

1. समर्थन — टाइप 1 मधुमेह से पीडित रोगियो के हितों  की रक्षा के लिए हम स्वास्थ्य कर्मियों, हितेषियो, अनुसंधान एजेन्सी  और संगठनो के साथ मिलकर नीतिगत स्तर पर बदलाव लाने के लिए प्रयासरत है।

2. जागरूकता— टाइप 1 मधुमेह और उससे संबंधित मुद्दों के बारे में जागरूकता फैलाने के लिए विभिन्न शैषिक अभियनो और कार्यक्रमों का आयोजन करते है।

3. एकजुटता शक्तिकरण — टाइप1 मधुमेह रोगियों को एकजुट कर सशक्त बनाने के लिए युवाओ द्वारा संचालित कार्यक्रमों, कार्यशालाओं के अतिरिक्त पिकिनक ‘Winter कैम्प’ जैसे आयोजनों और सोशल मीडिया पर हर समय सहायता के लिए तैयार रहना।

  • दिया का तीन वषका कार्यकाल

इन तीन वर्षों  में ‘दिया’ ने विभित्र एक-दिवसीय और दो-दिवसीय मधुमेह शिविर, शैषिक कार्यशालाएँ  जैसे वार्षिक “Carbohydrate Counting workshop”, “स्कूल जागरूकता अभियान” के  अंतर्गत  दिल्ली के बहुत से स्कूलों में “Type one Run” जैसे बहुत कार्यकर्मों  का आयोजन सफलतापूर्वक किया है। हम गरीब अथवा गाँवों में रहने वाले बचों को इंसुलिन गलूकोमीटर, शुगर को चेक  करने की स्ट्रिप्स आदी मुफ़्त दान करते है। ‘दिया’ ने कुछ ही महीने पहले मधुमेह से पीड़ित बच्चों के लिए “Butterfly Effect” नाम से कार्यक्रम की शुरुआत की। इस ऋखला में चार कार्यक्रम किए गए।

देश में  “लॉक डाउन” की घोषणा  मधुमेह रोगियों के लिए खतरे की घंटी से कम नही थी। घोषणा होने से पहले ही हमने इंसुलिन का बड़ा स्टॉक खरीदा, कुछ केमिस्ट (chemist) को होम डिलवरी के लिए  राज़ी कीया, उनकी सूची जारी की, और लॉक डॉउन के दौरान जहां इंसुलिन उपलब्द नही थी, मुहैया कराई गई। लॉक डॉउन के दौरान घरो में कैद टाइप १ के लिए Instagram live के माध्यम से डॉक्टर, आहार, योग व अनय प्रकार के मधुमेह Experts के साथ लाइव सेशन आयोजित किया गया जिसमें सबने खुलकर सवाल पूछे और अपनी शंकाओ का समाधान किया।

इसके अतिरिक्त हमने ग्लोबल डायिबटीज़ संगठनों के साथ भागीदारी की है। जैसे — Beyond Type 1, T1International, League of DiAthletes and International Diabetes Federation बहुत  से राष्ट्रीय अथवा अंतर्रष्ट्रिय समेलन में “दिया” ने भारत की और से प्रतिनिथ्तव किया और विश्व स्थर पर भारत में मधुमेह की स्थिथि में बदलाव लाने के लिए आवाज़ उठायी है। हमारा लक्ष्य है टाइप 1 डायिबटीज़ के बारे में जागरूकता बढ़ाना और यह सुनिश्चित करना कि आवश्यक जानकारी के आभाव में कोई बच्चा अपनी जान न गंवाए। हम भारत में टाइप 1 मधुमेह रोगियों को सस्ती एवं सुलभ स्वास्थ्य सेवाएं उपलब्ध कराने के लिए हर संभव प्रयास कर रहे है। अगर आप भी मधुमेह रोगी है तो डाइअबीटीज़ के बारें में जानकारी ऐवम स्वस्थ जीवन जीने के लिए भारत की सर्वोच्च टाइप1 डायिबटीज़ ऑर्गनायज़ेशन “Diabetes India Youth in Action” (DIYA) से जुड़े।